My family and I will be praying for young Brayden, and her Family! We went through something very similiar with our lil' boy Jacob, a year ago, when he was 4. Misdiagnosed first as growing pains, and close to 10 months fighting with our insurance, then a few more misdiagnosed scenarios. We were at Children's Hospital of Los Angeles for 3 months. I know firsthand you will do anything for your kids. Sleep is irrelevant, your personal health is sacraficed, and money means nothing in these times. My heart hurts for you guys, but trust me; prayer works! It sounds like she has the right doctors on her side. Be strong for her, and stay focused on the positive. I can't emphasize that enough. You will find love, support, and strength all around you, just as we did, I'm sure. Here's a link to our story, if you're interested: http://www.dumontduneriders.com/invision/index.php?showtopic=16831 Recently, we are realizing that we aren't out of the woods with our situation, but we will be praying for you!
God bless!